A BRIDLINGTON boy born with a rare congenial condition which left him unable to swallow has battled back to raise money for the charity that helped him as a baby.
Hugo Smith, who is now three and a half, was born three months prematurely weighing just 2lb with TOF, a rare condition which affects only one in 3,500 babies.
Now he and his family are helping to raise awareness of the charity that helped him after he underwent life saving surgery when he was only a day old.
“Hugo is doing so well, you wouldn’t know how ill he was when he was a baby,” said his mum Kim.
“The TOF charity is there for all children who are born with the condition and they helped us so much.
“He had a very hard start to life and without them we would have been lost, and Hugo wouldn’t have made such great progress.”
Hugo’s life saving operation saw him fitted with a special tube that went straight into his stomach to allow him to be fed. He spent the first six and a half months of his life in hospital and underwent surgery numerous times.
TOF leaves babies unable to breathe safely, and unable to swallow without choking.
However, Hugo slowly learned how to eat without choking and had his tube removed when he was two and a half.
“Every year we try to raise money for the TOF charity and in February we ran a raffle at Hugo’s nursery, Nursery Rhymes,” continued Kim.
“Lots of Bridlington businesses including Atken Photography, Starlight Studios, Peacocks and Tesco donated prizes and we also had prizes like children’s story books and an animal design cake.
“We managed to raise £52 for the charity, while letting parents at the nursery know a bit more about the condition.”
Hugo now has a little sister, Sophie, who is eight months old.
“He gets on so well with Sophie, he always wants to know where she is and he asks me where she has gone if she goes for a sleep.”